The Alpha-1 Canadian Registry
The Alpha-1 Canadian Registry is a confidential database where Canadian researchers store information shared with them by patients with alpha-1 antitrypsin deficiency. Gathering this information in one place allows researchers to learn more about the disease and how it affects patients.
The Canadian Registry was established by Dr. Ken Chapman in 1999 to facilitate research initiatives and promote the development of treatment for alpha-1. Physicians use the registry to track patient progress, which is important for improving the quality of life for those living with this condition.
The registry also keeps patients up to date on research advances, treatment options, events, and opportunities to participate in clinical trials.